TODAY IS THE SIXTEENTH ANNIVERSARY OF MY MOM VICKY'S GLIOBLASTOMA BRAIN SURGREY AT SWEDISH AMERICAN HOSPITAL AT 2:00PM!

Hi Everyone! Today is the sixteenth anniversary of my Mom Vicky's Glioblastoma brain surgrey at Swedish American Hospital! I remember it was a very tough day and frightening for my family and I! We had too be at the hospital at 9:00am so the doctors and nureses could prep her for surgrey! Her surgrey was at 2:00pm My Dad John my Grandma Alice my Aunt Marica my Uncle John, my Uncle Nino, my Grandma Bena and I were all in the waiting room hoping and praying for a marvelous recovery! After about six hours Dr. Alexzandar came out too the waiting room and told my family and I that my Mom DID survive the surgrey but he only could take about the size of a grapefruit of the tumor out! All of us were very anxious and excited too see her, she was very tired and happy for the surgrey to be over with! All of us had many tears of happiness! I went home with my Aunt Marcia and Uncle John for two weeks so my Dad John could take care of my Mom Vicky and have some quailty time together! When my Dad brought my Mom home from the hospital for recovery, she walked from the car with her walker and sat down on the couch too rest, the very nest day her whole right side was paralyzed! I helped her as much as I could! My Dad John was a WONDERFUL and DEVOTED husband he took care of my Mom Vicky WONDERFULLY! I also NEVER wanted too leavve her side! She had rehab at Van Mater rehab center, my Grandpa Bill was also there recovering from his stroke so he and my Mom had their meals togther which was neat! I also helped my Mom as much as I could by helping her with her thearpy, being there for support! I learned a lot of my strength and motivation from my Mom she was one of the strongest woman I've ever known! Sadly she lost her battle with Glioblastomia and passed away on Sunday June 19th 2005 at 2:10am at the age of 49 years old!

TODAY IS THE ELEVENTH ANNIVERSARY THAT I MOVED INTO MY APARTMENT COMPLEX AND BEEN LIVING INDEPENDENTLY!

Hi Everyone! Today is the eleventh anniversary of me living independently! I have new Personal Assiatant or PA and her name is Cindy! Cindy has worked for me for six years this year and we have be become wonderful friends! I never would have dreamed I would ever have a place of my own! I love my independence! I take Para Transit every Monday and Wednesday with my motorized scooter too Rockford Pain Mananagement for Physical and Massage Thearpy too help my muslces stay loose enough so I can still walk with my walker! I also get Traumeel and Hyalgon injections in my knees! Hyalgon rebuilds the cartledge and the Traumeel is for pain! I'm hoping I'll be able to go swimmimg in my Dad's gigantic olympic size inground swimming pool as much as possiable this summer! In the pool I can run skip jump and walk normally without any pain, in other words I'm FREE! Since the Cornoa viruis hit I'm not able too visit my best friend Sarah who has Multiple Sclerosis or MS! Sarah has lived at River Bluff Nursing Home in Rockford since 2013 but I have known Sarah since April 2010! We talk on the telephone as often as we can! It'll be nice when I can go visit Sarah again! I hope everyone follows the heart and lives out their dreams because you only have ONE LIFE TOO LIVE so MAKE THE BEST OF IT! I hope all of my dear reader's have a Happy Easter with their familes!

ANOTHER FABULOUS TRIP TOO COLORADO IN 2016!

Hi Everyone! I just went too Colorado too my family! We saw The Wizard of at the dinner theater, it was FANTASTIC! I also got in my Aunt's and Uncle's hot tubs which are WONDERFUL for my muscles I also got a LONG overdue massage it was GREAT! I spent with my cousin Kate and her family which was also special for me as well! I went over to my Uncle Nino and Aunt Joyce's house for a family dinner! I stayed with my Aunt Cindee and Uncle Will! They told me I could come for another visit next year! I'm looking forward too it!

TODAY IS THE SIXTH ANNIVERSARAY OF MY LIVING INDEPENDENTLY IN MY OWN APARTMENT!

Hi Everyone! Today is the sixth anniversary of moving into my apartment! I've made my goal in becoming a young disabled independent adult! Everything is a struggle in my life but somehow I make things look easy! When you have struggles you have too work for what you want because no one is going too give it too you! You have to earn it yourself and make your life work for you! It's doesn't matter what other people think, it matters how you as a disabled person can survie independently! Although I need assistance from other people I still am independent as I can be and that WILL continue my entire life! I'm very proud of the success I've made! I wish other people would be as brave as I have been! Sure everyone is scared if you NEVER try and experience new opportunities you'll never be independent enough too have your own life! I have chosen too be independent and work too the BEST of my abiltiy to achieve everything I want in life! So far everything I choose too do is working GREAT for me! NEVER be afraid too ask someone for help! People without CP, I call "normal" don't have a clue on what it takes for me too live my life but I also make it look easy when in reality it's NOT! I hope all you viewers take my advice!

TODAY MY APARTMENT COMPLEX HAD IT'S THANKSGIVING DINNER!

Hi Everyone! Today my apartment complex had it's Thanksgiving dinner at 1:00pm in the community room! They ordered it from ABC Catering! We had turkey,stuffing mashed potatoes, lettuce salad, gravy and pumpkin pie squares for dessert! Everything was great! They provide a Thanksgiving luncheon and a Christmas luncheon for us! Many people with disabilities can't get out or get too see their family so this the only holiday they have! That's why I stay as independent as possible so I can have the I life I choose! I just got back from Colorado visiting my family! We saw West Side Story as a dinner theater, it was AMAZING! I hope everyone has a nice Thanksgiving holiday with their families!

HAPPY BIRTHDAY UNCLE JOHN! A LOVING TRIBUTE TOO A WONDERFUL MAN THAT WILL LIVE ON IN OUR HEARTS FOR A LIFETIME!

Hi Everyone! Today would have been my Uncle John's 68th birthday! It's day also of mixed emotions for me! My Uncle John was one of the kindness men in the world that would put his wife children and family before anyone or anything else! He was one of the hardest workers that I knew plus if anyone was in need he would stop what he was doing and help them! He always accepted me as his third daughter and didn't look at my C.P.! My Dad John is also like that! I wanted too honer the two men that I admire the most in my life! My Uncle John taught me how too drive the PUG around the farm! There are SO many memories of the WONDERFUL man that we lost! I wish all of you knew him! He did everything he could too include in what ever he was doing even though it was difficult because of my C.P., but he made it work! It's a shame he and my Mom are NOT physically here too see start my adult independent life in my own apartment! They would be SO proud of me! I hope he's resting in peace! Uncle John, you were the best and never be forgotten! You will live on in my heart and my memories for a lifetime!

TODAY IS THE FIFTH ANNIVERSARY OF ME MOVING IN MY APARTMENT!

Hi Everyone! Today is the fifth anniversary of me moving into my own apartment! It's been a life changing experience for myself and my family! It has shown me that I can have my own independent adult life! I have made many friends, just think if I was living at home I NEVER would have got too enjoy and experience new opportunities that arise my way! It's a shame that my Mom Vicky or my Uncle John weren't alive too see me move in my own apartment and become the young independent woman I am today! I'm very pleased with my progress! It's NOT meant for disabled people too live in a world that is NOT designed to suit your needs! As a disabled person you have too make accomedations that are comfortable and easy for you! If people don't agree with the kind support and help you need then they are not meant to be in your life! I'm lucky that my family and friends agree too support my wishes, feelings, and include me in their lives because many people in my position are forgotten about or put in a nursing home because their families don't want too worry about them! So dear readers, if there's any way possible of being independent DO IT because you are only helping yourself, if you DON'T do it your are only harming yourself and not experiencing new horizons!

THREE MONTHS AGO I HIRED A NEW PERSONAL ASSISTANT!

Hi Everyone! Three months ago I hired a new Personal Assistant and her name is Cindy Wilson-Moore! She is very helpful and does anything I need or ask of her! Joy just didn't work out after awhile and I had her for five years! After awhile wanted things done her way! That's NOT how a Personal Assistant is suppose too treat you! They are suppose too do what you need and want NOT what they want too do! Things are getting more difficult for me physically as I get older! But I NEVER let that stand in my way! My apartment complex has started a sit down Zumba and a Bingo class in the community room once a month! I enjoy that very much! I do anything I can too keep my body as active as possible but having Asthma and C.P., doesn't make my life any easier but that doesn't stand in my way! Me getting older doesn't help things but, I just keep on plugging! I miss my Mom Vicky every day but she taught me how too be independent and gave me the skills I need too survive, it's just a shame that she can't enjoy my adult life with me! She would be very proud of the young adult that I've become and having my own life! My Dad John is very proud of me! My best friend Sarah had too move too River Bluff Nursing Home in Rockford IL. two years ago because sadly her M.S. progressed too where she could not live independently any longer! I go visit her when I can! She enjoys my visits very much! My Dad John does everything he can too make my life as easy as possible! He comes over too my apartment too visit me every week or so! So all in all my new year has been exciting!

TODAY WOULD HAVE BEEN MY MOM VICKY'S 59TH BRITHDAY!

Hi Everyone! Today would have been my Mom's Vicky's 59th birthday! I can't believe she'll be gone ten years next June 19th! That just shows people that they DON'T live for ever! On my Mom's birthday, Mother's Day, her weddong anniversary and Christmas I always think of her and remember how much she enjoyed living and spending happy times with her family! She always told me how much she loved me and how special and important I was too her! My Dad John and I were her world! We miss her very much! She taught me the tools that I need too survie! It's a shame that she wasn't physical here too see me become a young independent adult and have my own apartment! But I know she knows that I'm ok with whatever I decide too do with my life and who ever I meet! Have a wonderful birthday Mom! I love you ALWAYS!

TODAY WITH BE THE NINETH YEAR OF MY MOM'S PASSING AWAY FROM GLIOBLASTOMIA!

Hi Everyone! Today will be the nineth year of my Mom Vicky's passing away from Glioblastomia! She was a WONDERFUL woman that lives on in me! I can't imagion how much pain she was in! She was only 49 years old when she passed! But she she's out of pain with her Parents, Grandparents Uncle and Brother-in-law! She wanted the best for everyone! She always thought of people before herself! She used too say "How can I help people"? My Dad John lost his soulmate and the love of his life too a TERRIBLE brain tumor! No one deserves the pain and heartache of something that tramatic but if we ALL believe in God we'll be fine! No one will EVER take my My Mom's place and I DON'T think anyone will ever try! So reader's treasure your Mom's and also spend as MUCH time as you can with her! You NEVER know when the LAST time you can give your Mom a hug,tell her you love her and that she's the MOST important person in your life!

TODAY WILL BE THE NINETH ANNIVSARY OF MY MOM VICKY'S BRAIN SURGUREY!

Hi Everyone! Today is the nineth anniversary of my Mom Vicky's brain surgurey! Her surgurey was at 2:00 pm.! I remember it liike it was yesterday! My Mom road in the backseat with me on the way too the hospital! The surgrey took ALL day! After the day was over my Dad and I went too my Mom's room too see her! Then I went home with my Aunt Marcia and Uncle John for two weeks! Then she passed away June 19th three months later! My Mom was one of the most generious people who would give the shirt off her back! She was valavictorian of her class and on the honerrole! After two weeks was over my Dad came and brought me back home so I could spend as much quality time with my Mom while she could still think and talk before the tumor took over! I wish everyone had a WONDERFUL Mom like mine! She was my entire life! She helped become a young independent adult and part of the reason that I'm living independeently in my own apartment is because of her! She was a REMARKABLE woman who lives on in me!

FOUR YEARS AGO TODAY I MOVED INTO MY APARTMENT TO START MY NEW INDEPENDENT LIFE!

Hi Everyone! I just would like everyone to know that four years ago today, I moved into my new aparment! I enjoy living on my own! I've made many friends and I decide what I choose too do with my life! Even though I need help I still have a independent life! I hope I can continue too live an independent life for years to come! I know my Mom and my Uncle would also be very proud of my progress of independence! I was lucky too have my Grandma come visit before she passed away! She got too see me living independently and met all my new friends!!

TODAY WOULD HAVE MY MOM AND DAD 36TH ANNIVERISARY AND MY COUSIN LAURA AND I WENT OUT TOO LUNCH AND SHOPPING!

Hi Everyone! Today would have been my parenets 36th anniversay! Thay had a fairytale marriage come true that most couples dream about having! They were eachother's soulmate and best friend! They always did things mutuallly and never had one TRUE argument! Then three years later I came on the scene and their lives had too change drasticly because they had a daughter with C.P. and other problems but they also decided that they would make my life as easy, comfortaable and loving as they could! Now I'm an adult living on my own in my own apartment and have my own life! Also today my cousin Laura and I went out too lunch and shopping, we had a BLAST! We are going too try to do that once a month! It's so nice too have people love and care about you and DON'T look at your disablity, they look at you like you're a normal person! That's a WONDERFUL feeling! If there is anything you want too do in your life DO IT because you ONLY have ONE life to live!

TODAY MY APARTMENT COMPLEX HAD A MARDIGRA DINNER!

Hi Everyone! Today my apartment complex had a Mardigra dinner in the community room! Everyone brought a dish too pass there was rice, coleslaw, vegetables dounuts and cupcakes! It was very good! I hope everyone celebrated today! When you have Cerebal Palsy, any disablity or a disease sometimes you have make your own enterainment and do things you enjoy! It's no ones responsinbilty too make you happy! That up too you! People will help you if you ask them nicely but they DON'T have too help you do anything! I'm lucky I have friends and family that are willimg to be part my life because a lot of disabled people don't have that privliage! I'm thinking about volounteering so least I can get out and meet more people! Someday I would like too get married but I'm NEVER going too meet anyone sitting my apartment, so the choice is up too me and no one else! So if any of you have a dream do your best to full fill it because even though your disabled dossn't mean you can't have your own life and do things you enjoy!

TODAY WAS KELLYS BABY SHOWER AT MY AUNT MARCIA'S HOUSE!

Hi Everyone! Today was my cousin Matt's wife "Kelly's"baby shower at my Aunt Marcia's house! Everyone got the about 1:00pm. it lasted until 4:00pm! We had fruit, crosant sandwiches, and angle food cake for dessert, then Kelly opened up her gifts, which were very nice, then everyone said their goodbye's and went home! It was a very nice day! I know Matt and Kelly will make WONDERFUL parents! NEVER be afraid to do things you really want too do, life has it'a challanges but if you're strongwilled you can do anything! Work for the best and try your hardest to achieve what you want in life, who knows it may happen for you as well, just keep a positive additude on life! Now that I'm older things are more and more difficult for me to do but I do what I can for myself! I hope all you take my advice to heart! It's NOT easy living wirh C.P., it's one most exsauhting challenages you'll ever indure, but always keep a positive additude and everything will come out right in the end!

I JUST RETURNED HOME FROM A WONDERFUL VISIT TO COLORADO TOO VIST MY FAMILY!

Hi Everyone! I just returned hone from a WONDERFUL visit too Colorado to visit family! My Uncle Nino and I went too see Ben Haeper play at the rock fest that weekend! He was awsome! I stayed with my Aunt Cindee and Uncle Will, we had a cocktail party and that was a lot of fun! I also spend time with my cousin Kate and her husband Gerritt and their percious kids Blake and Melinda! We all went too the park and had a picnic! My Aunt Cindee and I went too see The Sound of Music at a dinner theater which will be something I'll never forget! NEVER be afraid too expand your horizons, just because you have C.P. ot any disabilty dosen't mean that you are different! YOU have too make the descions on WHAT you want your life too be! NO one can make them for you! That's why I always stress to everyone "Be as independent as possiable"! In the long run it will make a HUGE differance in your lives, but YOU are the only one that can decide want you want your life to be! I choose too be as independent as I can! I know that my family and friends will ALWAYS help me if I need it, but I'm the one that has to make decisons on what I want my life too be and no one can make that dexsion for me! I hope all of you listen and understand what I'm trying too teach you! My family and friends hekp and also choose too be part of my lide! You can't make someone love you and be apart of your life it has too be their choice, I'm just fortinate enough that my family and friends vhoose too accept me and want to be part of my life! Try everyday too be as INDEPENDFENT as possiable it will make your lives more fullfilling knowing that you can take care of youraeleves and hopefully live independently on your own someday like I have achievd! YOU are the only one that can make that happen, your family and friends are NOT responsible for your happiness and wsellbeing! They will always be there too help you and be there for love and sopport but you are the ONLY one that YOU can make the differance plus choose which path you want your life to lead!

TODAY WOULD THE BEEN MY MOM VICKY'S 8TH ANNIVERSARY OF HER BRAIN SURGREY!

Hi Everyone! Today would have the eight anniverssay! She was a fighter until the end! She also was a very SPECIAL person! She always told me that she learned a a lot of strength from helping me with my surguries and threapy! When the cancer took over and my Mom could no longer walk or talk, she asked me what to do? I told her, you need too work the hardest you ever worked in your entire life,it won't be easy but you can do it! It was very difficult for her not too be able too stand and walk by herself! Her brain surgurey was at 2:00 p.m. eight years ago today! She did survie her surgurey! I went home with my Aunt and Uncle, they told my Dad that they would keep me as long as he needed them too! I stayed with them about two weeks, then the hosipital released my Mom too come home! But she still had to go too rehab! Visitng Nurses came too my Dad's home too take care of my Mom! I spent as MUCH time as I could with my Mom! My family and I lost a very SPECIAL person, that we NEVER can replaced! My Mom touched everyone differently and special in her own way! In spirit she will ALWAYS be with us!

HAPPY 35TH ANNIVSARY MOM AND DAD!

Hi Everyone Today my WONDERFUL parents Vicky and John would have been married for 35 AMAZING years! They had a fairytale marriage that most couples could dream about having! They were eachother's soulmate and best friend! I'm sure having a child with a disablity was not the top piority on their list and not easy by any means, but as a couple always seemed too make it work! My Mom and Dad worked as a team on everything they decided too do! They taughht me respect and how too be independent as possiable! They NEVER had one true argument their whole marriage, which is very rare! I'm very grateful for the parents I have! I wish my Mom was still with us but she will ALWAYS be with my Dad and I in spirit!

YESTERDAY MY GRANDMA BENA PASSED AWAY FROM LIBPHOMIA!

Hi Everyone! I have some bad news, my Grandma Bena passed away from Limphoima yesterday morning around 2:10 A.M. When I saw her in February she was pretty good but in a LOT of pain! I think she was waiting for me too see her one last time! She was my Mom's Mom! She was 91 years old! She was a HUGE part of my life, she always took me to my thearpy appointments, took care of me when no one else could or would! She had a BEAUTIFUL singing voice, she was a seamtress, and knew how too bake! She always treated me with respect and always made me feel loved and important regaurdless of my disablity! She and I also went too Detroit and Texas too visit family! She cherished her children, grandchildren, great grandchildren, nieces, nephews, friends and anyone that was special too her! I wish all grandmothers were like my Grandma Bena, she was a very SPECIAL person that I will always remember, love, and cherish! Now she finally is out of pain and in heaven, with her parents Rose and Tony, my Grandpa Tony, my Mom Vicky, her brother Tom, her best frind Tereasa, and my Uncle John! There probably having a good old time reminicing about the good old days! We all will miss her very much! We love you Grandma!

TODAY IS THE SEVENTH YEAR OF MY UNCLE JOHN"S PASSING!

Hi Hi Everyone! Today will be the seventh anniversary of my Uncle John's passing! Let me tell you a little bit about him! My Uncle John was a very special person! He was a hard worker, a wonderful husband and father! He would go way beyond his responsiblities to help anyone in need! His wife, children,and grandchilderen were his number one priority before anything or anyone else! He was on the Pecatonica school board and worked hard on his farm! He was a second father too me and he also was my Godfather! He wanted his children too acheive everything they could in life and experience the very best! My Aunt Marcia and Uncle John raised three wonderful children, who learned too achieve and work hard for what they want in their lives, if it hadn't been for my Uncle John and my Aunt Marcia, their kids wouldn't have turned out as well as they have! My Uncle John always could make you laugh, that was one of the most things I loved about him! He and I used too have a joke, I would call him the "OLD GUY" and he would get on the floor, tickle and wrestle with me! But as I got older he and I would still joke around like that! His nickname for me was bobo! At Chirstmas he would put a santa hat on a give out Christmas gifts and then after opening gifts with the family he would start a HUGE paper ball fight! My Uncle John would usally win! He was physically very strong! He would hall me over his shoulder like a sack of potatoes and think nothing of it! There are so many I could tell all of you about my Uncle John but I would writing for days! All of us the knew loved him lost a very SPECIAL that never replaced! He's out of pain now so that's the most important thing, he's also up in heaven with my WONDEFRFUL Mom Vicky, having a good old time!